Jay's blog
COTA MEETING
Submitted by Jay on Sat, 03/28/2009 - 11:45amThe cota committee met this morning and got to spend time with Jack as we planned our upcoming events.
Keep eye out for our May benefit at the Hopleaf on Saturday May 23 in the afternoon. BoyGirlBoyGirl will be performing! More info to come!
Buttons and learning how to blog design
Submitted by Jay on Thu, 03/05/2009 - 4:44pm|
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These are an example of one of the buttons we made in order to raise awareness and support for Jack. |
Jack Robert Benjamin
Submitted by Jay on Thu, 01/29/2009 - 6:37pmTUESDAY, JANUARY 27, 2009 09:59 AM, CST
The sadness goes away quickly because his smile is too big to allow anyone to wallow. Such a happy bunny.
I know how lucky we are. He's here and his quality of life is really good. I want a guarantee that he'll have a good life - that he'll outlive me - but no parent gets that. Even with healthy kids, you can't get that guarantee. You just have to enjoy the time you have and try to make every day special and memorable.
Jack Robert Benjamin
Submitted by Jay on Thu, 01/29/2009 - 6:36pm
Lovely lovely lovely lovely day!
We are back from Children's. The blood draw was swift and relatively (for me, anyway) painless. We walked in and Cana (Conna? Kana?) one of our fave phlebotomists (sad, really, when you have a 'fave phlebotomist') was behind the desk.
"You!" I said, pointing. "You! Kana (Cona? Khanna?) have to draw Jack's blood! .....please." {Always remember to say "please." }
She did. It was fast. One stick and she even got a half-smile out of him (between screams) after the deed was done. And it all happened right on time - during his cyclosporine trough. Woo Hoo!
Jack Robert Benjamin
Submitted by Jay on Thu, 01/29/2009 - 6:34pmTUESDAY, JANUARY 27, 2009 09:59 AM, CST
The sadness goes away quickly because his smile is too big to allow anyone to wallow. Such a happy bunny.
I know how lucky we are. He's here and his quality of life is really good. I want a guarantee that he'll have a good life - that he'll outlive me - but no parent gets that. Even with healthy kids, you can't get that guarantee. You just have to enjoy the time you have and try to make every day special and memorable.
